Sick babies denied treatment in DNA row
by Julie Robotham
BABIES with a severe form of epilepsy risk having their diagnosis delayed and their treatment compromised because of a company’s patent on a key gene.
It is the first evidence that private intellectual property rights over human DNA are adversely affecting medical care.
Deepak Gill, head of neurology at the Children’s Hospital at Westmead, said he would test at least 50 per cent more infants for the SCN1A gene - which would diagnose the disabling Dravet syndrome - if the hospital could conduct the test in-house.
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